The desperate
parents of a boy whose head hangs at a 180-degree angle have admitted they
would rather he died than continue to suffer.
Mahendra Ahirwar,
12, from Madhya Pradesh in central India, suffers from a rare condition that
makes his neck bend and his head hang from his body.
His weak backbone
means he can't stand or walk and is restricted to a sitting
position. Mahendra can just about crawl but needs help to eat and go to
the toilet.
His father Mukesh
Ahirwar, 40, and mother Sumitra Ahirwar, 35, who both work as labourers when
they can, say they have consulted more than 50 doctors across India but none
could diagnose his condition. More photos below ......
‘I cannot see him
suffer anymore,' said Sumitra. 'Watching his life is devastating.
'He cannot do
anything by himself. He just sits in a corner of the room all day. It's no
life.'
She added: 'I have to carry him like a baby everywhere but he is 12 years old, how will I carry him when he grows even older?'
‘If doctors cannot
treat my son it is better that God takes him.’
Shockingly,
members of the community have blamed Mahendra's condition on Mukesh's past sins
and believe he is to blame for his son's disability.
Sumitra, who also
has healthy 16 and 10-year-old sons and a 14-year-old daughter, did not visit a
doctor when she was pregnant with Mahendra.
She said all their
other cjildren were all born at home like Mahendra and they never thought to
conslt a doctor or carry out an ultrasound.
They only noticed
that his head was starting to hang when he was about 6 months old.
'At first we
thought he was just a little weak and he'd be fine in time, but by his third
birthday he wasn't able to keep his head upright at all,' his father explained.
Mukesh, who earns
about Rs200 (£2) a day on construction sites, has borrowed money from his
friends and relatives to help find medical treatment for his son.
But he said two
years ago he decided to stop taking Mahendra to see any doctors, adding: 'I
took him to all the hospitals that I could afford.
'Even India's
premier hospital, All India Institute of Medical Sciences in New Delhi, but
after spending two weeks there doctors failed to tell us if my son could be
treated.
‘With a broken
heart we returned home and decided to raise him and try to give him as
comfortable a life that we can.'
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