Hayley
Okines, from Bexhill, East Sussex, became known as the 100-year-old teenager
through her efforts to raise awareness of progeria.
She
died on Thursday evening. Her mother, Kerry,
announced Hayley's death saying, "My baby has gone somewhere better. She
took her last breath in my arms at 9.39pm,’’
Hayley,
who published an autobiography at the age of 14, had made a number of
appearances where she spoke about her condition
Hutchinson-Gilford
Progeria Syndrome causes accelerated ageing in those affected. People with the condition also suffer heart
problems, lack of growth and loss of body fat and hair.
The
Progeria Research Foundation posted on its Facebook page: "The entire
Progeria family mourns together with many as we say goodbye to Hayley Okines,
our smart, beautiful and spirited English rose, who passed away today at age
17."
Hayley and her mother
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