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Friday, 3 April 2015

''100-year-old teenager'' and Progeria campaigner, Hayley Okines is dead

 
Hayley Okines, from Bexhill, East Sussex, became known as the 100-year-old teenager through her efforts to raise awareness of progeria.
She died on Thursday evening.  Her mother, Kerry, announced Hayley's death saying, "My baby has gone somewhere better. She took her last breath in my arms at 9.39pm,’’

Hayley, who published an autobiography at the age of 14, had made a number of appearances where she spoke about her condition
Hutchinson-Gilford Progeria Syndrome causes accelerated ageing in those affected.  People with the condition also suffer heart problems, lack of growth and loss of body fat and hair.
The Progeria Research Foundation posted on its Facebook page: "The entire Progeria family mourns together with many as we say goodbye to Hayley Okines, our smart, beautiful and spirited English rose, who passed away today at age 17." 

Hayley and her mother

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